INVESTIGATIVE REPORT OF A FAMILY HEALTH ISSUE

RUNNING HEAD : Family Health Issue

Cystic Fibrosis as Family Health Issue

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Cystic Fibrosis as Family Health Issue

Abstract

Cystic Fibrosis -as a family health issue- is a common issue faced by many different families across the globe . The autosomal genetic disease is a life threatening condition that commonly appears as early as childhood . Preventive measures available are genetic diagnostics and tracing the history of the disease through family genogram . As a family issue , cystic fibrosis can lead

to imbalance in the family 's psychological and emotional estate due to the feelings of guilt , denial and burdens of care needed for the survival of the ill member of the family

Introduction

The overall household population of Australian community comprising of 17 has been found to be affected by disabling genetic illnesses , such as cystic fibrosis (Wertz and Fletcher , 2004

.106 . According to Ballard (1999 , cystic fibrosis affects approximately 1 in every 2500 children in Australia (p .85 . In Australia , 800 children with case of Cystic fibrosis are presently living in New South Wales , while approximately 2500 infected children are living nationwide (Ballard 1999

.85 . Cystic fibrosis , as a family health issue , has caused significant disruption in the area of family 's psychological and emotional well-being . The main issue explored in this report is the impacts of cystic fibrosis patients on family health . Cystic fibrosis affects primarily the exocrine glands of the body , which immediately results in excessive production of thick mucus that can block different pathways of body systems (Ballard , 1999

.85 . In the body of the discussion , the hallmark involves the confrontations commonly done by the family members that lead to family stress among its members . The study cites the etiologies , impacts , nursing interventions and evidence-based interventions in resolving family health issue associated to cystic fibrosis . Health care needs and transitions of care required by cystic fibrosis patient further complicate family 's task in providing care to their patient . Based on studies identified within the discussion , the primary contributing factors of family stress in rendering care for their cystic fibrosis patient are (a ) lack of proper understanding of the disease and required management , and (b ) increasing needs of the patient requiring progressive care regimen . In to resolve this family issue , we have recommended CP-FEP as a learning program aimed at establishing the capacity of the family to render self-administration care regimen for their patient . Nursing recommendation has chosen CP-FEP due to its practical and self-care natured strategy of resolving the family 's care needs for their patient The study is useful for families with possibilities or actual patients suffering from cystic fibrosis since cystic fibrosis is one of the major causes of preterm deaths , decrease of lifespan and chronic disabilities among children . By understanding the care regimens and concepts of the disease , the family can better manage their patients leading to the improvement of both patient and family 's quality of life The study limits itself in...